We also enrolled in a research study investigating the cause(s) of craniosynostosis. It's just a simple blood draw for the little guy that they'll do as they start his IVs on Friday morning. Arron & I will also have blood drawn as part of the study. They are looking for genetic variations that may cause cranio. There are already 3 or 4 genetic conditions that they know cause it and Arron will be screened for all of them. If he tests positive for any of the known conditions, they will call us & let us know.